Monday, May 17, 2010

Sedated ABR-Jackson's day in the hospital

Thank you all for all of your encouraging comments on my post about Jackson's speech delay Your comments really help me to know that all children are different and ease my worries. 

Many of you suggested that Jackson get a hearing test, just in case.  At the time, Jackson had already gone in for a typical hearing test, and the results were inconclusive.  He hates doctors.  As soon as we step into the medical clinic he starts screaming and doesn't stop until we leave (unless they have Dora on the TV!) So when we went in for the hearing test, he was fine until the doctor started messing with his ears, then we just could not calm him down.  They did the test anyway.  He responded to the louder noises, but since he was crying so much, they couldn't tell if he wasn't hearing the lower noises because he was crying or because he literally could not hear them. 

So we were waiting for them to do a sedated ABR on him.  The best way that I can explain this, is that after they sedated him, they attached electrodes to his head, then played sounds and tracked his brain waves so that they could see if he was hearing them or not.  I was nervous about letting them put him to sleep, but so many doctors thought it was necessary, that I let them do it.  Luckily, my MIL came to town to help me out. 

The test was on Thursday.  We were at the hospital for almost 7 hours.  The test itself only took about 45 minutes, and I had no idea that the whole process would take that long.  As soon as we changed Jackson into his hospital gown, he got upset.


and tried to leave...

The doctor who came in to inspect Jackson before they administered the sedative announced that Jackson has "the tonsils of a 4 year old" and he told us that this would increase the chance of something going wrong during the procedure. More specifically, there was a chance that Jackson would stop breathing.  My MIL and I were understandably upset, and honestly, I just wanted to leave right then.  No matter what the doctors said, I was convinced that Jackson could hear just fine.  The doctor and nurse calmed us down and convinced us to go through the procedure, telling us all of the things they have in place to keep that from happening.  They actually came in and measured him for oral airways while we waited. 

In the end, the test went perfectly.  The audiologist told us that Jackson slept fine (apparently some children wake up during the procedure) and that he has perfect hearing! (You don't know how hard it was for me to shut my mouth and not yell TOLD YOU SO!) We were extremely happy about that, but we still had to wait around the hospital for him to wake up and make sure he could drink juice without vomiting before they would release him.  This turned out to take a long time because they had to give him an extra dose of sedation to get him to go to sleep. 


Trying to calm him down (it didn't work!)

I cannot tell you how glad I am that this whole ordeal is done! And now when Jackson does something he knows he's not supposed to do even while I'm telling him no, I yell "I KNOW you can hear me!"

16 love me:

Brandy said...

I'm glad he was great hearing. But what a mess to have to go through to figure that out. So what's the next step?

Kathy said...

I understand that feeling of relief. Elinore, almost 22 months, just had an ABR last Tuesday, and started speech therapy two weeks ago. We did ours at the Hearing and Speech Agency and I was worried about getting her to fall asleep on cue (hers was not sedated). Fortunately, she still nurses, and she did fall asleep on cue(!) and also has perfect hearing. With the words they were throwing around before the test (moderate to severe hearing loss, surgery, hearing aids...) the results made me ecstatic. I am following your journey, and can't wait for the updates. Kathy King kathleenmking6 at msn.com

Writing Without Periods! said...

Aw, this must have been scarry for you. He looks so cute in that hospital gown.
Mary

MommyNamedApril said...

wow, no fun! my oldest didn't walk until 18 months and then didn't say more than a couple words until well after 2 years old. now he's 3.5 and DOESN'T STOP TALKING!

fortunately, we had a ped who kept insisting we just be patient. we did take him for an early intervention analysis a little after his second birthday, but he didn't qualify for services because he only had one current delay.

it all turned out fine though, as i'm sure it will with your little guy :-)

Ronnica said...

Glad that it went swimmingly!

litanyofbritt said...

he's a cutiepie. i brought my 4 year old for a speech eval recently, and was told not to worry about it. she also didn't crawl until 11 months or walk until 17 months. she is a perfectly normal, active, caught up kiddo now.

christy rose said...

Oh wow! What an ordeal!!! But I bet you are glad that it is over and you have conclusive evidence that he has great hearing. That being the case, I would not worry one bit about his speech coming along. He will be just fine!!! :)

Mandy said...

I am so glad everything is Ok!! At least you know for sure now!! :)

Mrs Gloves said...

What a huge relief!

Laina said...

Hi there. I noticed that you are my newest follower so I wanted to say "thank you" to you :) I really like your blog. What a terrible ordeal you had to go through with your son. Doctors.....mother's instinct has so much more power. Trust in that. Glad everything with your son is okay :)

Just Breathe said...

That is wonderful news. Sorry he had to go through so much and your poor heart had to feel so stressed.

Lucy said...

I'm so glad you got good results from the hearing test! And I know he was upset, but he's super cute in that hospital gown!!

~J said...

Awwww! I'm so glad you got good news..and Jackson makes a hospital gown look FLY!

My oldest son's speech was REALLY delayed...I got so many comments regarding it too..but I just knew he was going to be okay...he's 12 now..and never shuts up. ;)

Thanks for linking up to Follow Me Back Tuesday!

kathryn said...

I am so, so happy to hear Jackson's hearing is perfect! Wooohooo!!! I do understand {unfortunately} your fear and worry about having to put your baby under. Avarie had to have fairly major surgery last August. It was the longest 8 hrs of my life {and we had a 3 day hospital stay}. It's horrible seeing your baby miserable and not being able to take away their fear, worry, pain, uncomfortableness, etc.

Jenny said...

I'm so happy to hear the test went well! How stressful though, for you and him!

Acting Balanced Mom said...

glad things went well with the hearing test! are you going to follow up with an ENT about the enlarged tonsils?